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MEperspective

GIVING A LITTLE INSIGHT IN OUR LIMITED LIVES & PERSPECTIVES

Imagine you have to spend your life suffering in isolation!

M.E. or Myalgic Encephalomyelitis is a strongly debilitating neuro-immunological illness that can lead to severe disability. Patients suffer from many symptoms like muscle pain and weakness, neurocognitive impairment, flu-like exhaustion and many more. Characteristic for the illness is a condition called Post Exertional Neuroimmune Exhaustion (PENE), which means that even small physical or cognitive exertion can worsen some or all symptoms. In most severe cases patients are so weak and sensitive, that they have to spend their whole life bound to their bed in dark and soundproof rooms constantly suffering from severe symptoms.

M.E. is one of the last major illnesses which are rarely explored. At the moment the exact aetiology of M.E. is unknown and there is no cure for the disease. So much the worse, M.E. research is heavily underfunded. In 2016 the US National Institute of Health spent $ 8 per patient and year. For comparison the same number for Aids is $ 3’000.

Around the world approximately 17 million people suffer from from M.E. 75% of them are incapable of work and around a quater is house or bedbound. A major part of M.E. patients has to spend most time in isolation in their homes and disappear from public life due to their strongly debilitating illness. On MEperspective they show their perspective while lying down. It’s their perspective in the sense of the view they see the most of their time. But it is also their perspective in the sense of their outlook, if medical treatment won’t bring them back to life!